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FEBRUARY
2000
Immunization
registry news from All Kids Count.
Issue
Number 12
February 26, 2000
Welcome
to SnapShots, All Kids Count's newsletter
about the progress, best practices and
accomplishments of immunization registries
across the country. We invite you to share
news about your registry. Email us:
SnapShots@allkidscount.org or call us at
(404) 687-5615 with information about a
successful programmatic or technical
innovation, major accomplishment or
milestone that your registry has reached.
SnapShots is sent to subscribers monthly by
All Kids Count.
HEALTHY
PEOPLE 2010 INCLUDES IMMUNIZATION REGISTRY
GOAL
COALITION
"ROUND-UP" HIGHLIGHTS IMMUNIZATION
REGISTRIES
PROVIDER
RECRUITMENT TOOLKIT UNDER DEVELOPMENT
SAN
BERNARDINO REGISTRY HELPS CHILDREN RECEIVE
SHOTS
ON TIME
ARKANSAS
REGISTRY DETECTS ERRORS, RECALLS CHILDREN
DHHS
HEALTH PRIVACY REGULATIONS EXPECTED IN LATE
SPRING
REGISTRY
SESSIONS TO HIGHLIGHT
PRIVACY/CONFIDENTIALITY AND
SECURITY
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All Kids
Count is a national network of demonstration
projects working to develop and implement
community-based immunization registries for
infants and toddlers. Collectively, All Kids
Count projects represent the country's most
advanced base of experience with
immunization registries. All Kids Count is
supported by The Robert Wood Johnson
Foundation with direction and technical
assistance from The Task Force for Child
Survival and Development.
HEALTHY
PEOPLE 2010 INCLUDES IMMUNIZATION REGISTRY
GOAL
The Healthy People 2010 objectives, released
in January by Secretary of Health and Human
Services Donna Shalala and Surgeon General
David Satcher, include the goal of
increasing the proportion of children who
participate in fully operational
population-based immunization registries to
a target of 95% of children under age 6. The
objective notes that "population-based
immunization registries will be a
cornerstone of the Nation's immunization
system by 2010." Since its inception in
1979, the Healthy People initiative has
provided a road map for states, communities,
professional organizations, and groups to
work together to improve health.
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COALITION
"ROUND-UP" HIGHLIGHTS IMMUNIZATION
REGISTRIES
The Oklahoma County Immunization coalition
membership drive drew over 280 potential
coalition members to its
"Round-Up" in February. The
meeting culminated in a "Round-up
Luncheon" at the Cowboy Hall of Fame.
Mrs. Betty Bumpers, co-founder of Every
Child By Two, gave the key-note address,
followed by a number of distinguished
speakers, including Mr. William C. Watson
Jr., director of All Kids Count. The lively
and enthusiastic affair clearly highlighted
the important role immunizations registries
can play in sustaining high immunization
rates.
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PROVIDER
RECRUITMENT TOOLKIT UNDER DEVELOPMENT
A toolkit to help states and communities
recruit providers is under development by a
provider recruitment workgroup composed of
representatives from registries across the
country and facilitated by All Kids Count.
The toolkit, expected to be available by
fall 2000, will be applicable to a variety
of registry/health care environments. It
will include "how to" information
and best practices for recruiting providers,
a section on frequently encountered
problems, and sample materials gathered from
registries across the country. Registries
are encouraged to submit marketing plans,
research tools, and marketing materials that
have proved effective to the workgroup.
For information, contact the workgroup
chair, Martha Rome, mrome108@aol.com
or
Terry Hastings, thastings@taskforce.org.
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SAN
BERNARDINO REGISTRY HELPS
CHILDREN RECEIVE SHOTS ON TIME
The San Bernardino Co., Calif., immunization
registry conducted a study on the average
age in months for children completing either
selected immunization or series completion
before and after implementation of their
registry. The registry has had a major
impact on the average age at which a child
receives the MMR vaccine, a one-dose shot
due at 12-15 months of age. In 1992, the
average age for receiving an MMR vaccine was
33 months. In 1999, after the implementation
of the registry and the reminder/recall
function, the average age was 13 months. The
registry has helped return children to their
providers for immunizations, and most
likely, other well-child services.
For information, contact Sarah Mack, smack@co.san-bernardino.ca.us.
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ARKANSAS
REGISTRY DETECTS ERRORS, RECALLS CHILDREN
The Arkansas immunization registry has
proved highly effective in increasing
vaccine safety. In 1996, 133 children
received the wrong dosage of HepB at birth.
When the hospital submitted forms to the
health department for data entry into the
immunization registry, the dosage error was
discovered and the hospital was assisted in
notifying each family that a repeat dose was
needed. In 1998, a similar situation
occurred with 180 children given the wrong
dose at birth. A registry-generated list
again helped the hospital inform patients.
In 1999, the Arkansas registry identified
139 children as receiving possible invalid
doses of DTaP and Hib that had been
incorrectly combined to prevent two
injections. The registry was able to
determine that of the 139 children, 81 had
actually received an invalid dose. An
additional 49 children were identified as
needing other vaccines, and recall notices
were sent to parents. Also in 1999, the
registry identified 51 children who had
received vaccine from expired lot numbers
and helped to recall them.
For information, contact Karen Fowler, kfowler@mail.doh.state.ar.us.
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DHHS
Health Privacy Regulations
Expected in Late Spring
The deadline for commenting on the proposed
health privacy regulations published by the
Department of Health and Human Services
expired February 17. Comments are posted on
the DHHS website, http://aspe.os.dhhs.gov/admnsimp/index.htm.
Regulations
are expected to be finalized in late spring.
In February, the House Subcommittee on
Health of the Committee on Ways and Means
held a hearing on confidentiality of patient
records, at which numerous groups
representing patients, privacy advocates,
doctors and insurers testified. While most
groups applauded the rules as a first step
towards privacy protections, privacy
advocates and doctors groups say the
regulations need to be strengthened,
especially in regard to patient
authorization for use of data. Health plans
argue that the regulations will add an
estimated $40 billion over five years to
adhere to the regulations, while DHHS
estimates $3.8 million.
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Registry
Sessions to Highlight
Privacy/Confidentiality and Security
As DHHS finalizes its regulations for
privacy and confidentiality (see above),
sessions at the Immunization Registry
Conference, March 27-29 in Newport, Rhode
Island, will explore how registries protect
the privacy of registry participants and
confidentiality of registry data, and
provide an update on HIPAA as it pertains to
registries.
We
hope you will forward this e-mail to others
who may be interested in receiving SnapShots.
To SUBSCRIBE, please go to http://www.allkidscount.org/suscribe.
This
information will remain confidential and
will not be sold or passed on to other
parties.To UNSUBSCRIBE, please go to: http://www.allkidscount.org/suscribe.
COMMENTS,
PROBLEMS or QUESTIONS, Please contact us at:
All Kids Count
750 Commerce Drive, Ste. 400
Decatur, GA 30030
Voice: 404-687-5615
FAX: 404-371-0415
Web: http://www.allkidscount.org
E-mail:
snapshots@allkidscount.org
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