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APRIL 2000

Immunization registry news from All Kids Count.

Issue Number 13                                                   April 28, 2000

Welcome to SnapShots, All Kids Count's newsletter about the progress, best practices and accomplishments of immunization registries across the country. We invite you to share news about your registry. Email us: SnapShots@allkidscount.org or call us at (404) 687-5615 with information about a successful programmatic or technical innovation, major accomplishment or milestone that your registry has reached. SnapShots is sent to subscribers monthly by All Kids Count. Current and past issues also are available on the All Kids Count Web site: www.allkidscount.org

Health Care, School Savings Outweigh Registry Costs

New data show that immunization registries can save twice as much they cost. Studies by All Kids Count and NIP/CDC estimate that a fully operational system of immunization registries will cost $5 per child per year, or approximately $125 million annually.  These same studies show that registries can annually eliminate over $250 million in costs incurred in this country by making accurate, up-to-date information on immunizations available to health care professionals and schools.

Fully operational registries could save $113 million annually for the health care system, and at least $137 million annually for schools, Head Start and day care programs by managing information more efficiently. Additional savings could be realized by decreasing the incidence of disease, preventing vaccine wastage, facilitating costly vaccine recalls, and streamlining doctors’ office operations. Savings for schools may be greater than $137 million, as data from all states have not yet been collected.

Since 1992, over $200 million has been invested by federal, state and local governments, and private foundations in the development of community- and state-based immunization registries. Recent data show that approximately $50 million is now spent annually on registries. Of that, 42% is federal 317 funding, while 58% is from states/counties/cities, HCFA/Medicaid, health plans, foundations, and fee-for-service. Contact: All Kids Count National Program Office, info@allkidscount.org

MMWR Reports “Substantial Progress in Registries”

The Centers for Disease Control and Prevention (CDC) published an article titled "Progress in Development of Immunization Registries--United States, 1999" in the April 7, 2000, issue of the MMWR. This study is the first attempt to quantify and evaluate state- and community-based immunization registry development in the United States. The article reports on data from the 1999 Immunization Registry Annual Report, a questionnaire which assessed self-reported data from 62 of 64 immunization program grantees. The article notes that “data suggest that substantial progress has been made in U.S. communities and states in enrolling children, recruiting providers, and implementing registry functional standards,” but that “substantial challenges remain.”  The complete article can be found at www.cdc.gov/epo/mmwr/preview/mmwrhtml/mm4913a2.htm

Data from the annual report can be found online at http://www.cdc.gov/nip/registry/ar_freq.html.

All Kids Count Unveils New Web Site Design

All Kids Count will launch its newly redesigned web site this month. In addition to a more visually appealing, updated look, the new site enables the user to more easily find information and important links. The site is organized into the following sections: What’s New, About Immunization Registries, About All Kids Count, Key Issues, Research & Evaluation, and Publications and Online Resources. New additions to the site include PDF versions of our Policy Brief and Focus newsletter, a search engine, an online subscription and order form, and email links to national program office staff. New information will continue to be added in coming weeks. Check out the new site at www.allkidscount.org.

2000 Immunization Registry Conference

Almost 400 people attended the three-day National Immunization Registry Conference in Newport, Rhode Island in March to hear reports on the progress, challenges, and future of immunization registries.  Conference co-sponsors - the National Immunization Program/CDC, All Kids Count, Rhode Island Department of Health - and the planning committee assembled an outstanding group of presenters.

The opening plenary session featured Patricia Nolan, director of the Rhode Island Department of Health and current president of ASTHO; Georges Peter, director of Division of Pediatric Infectious Diseases, Rhode Island Hospital and current chairman of the National Vaccine Advisory Committee (NVAC); and Rhode Island Senator Jack Reed, who serves on the Senate Health, Education, Labor and Pensions Committee, and has become a Congressional leader on behalf of immunizations.

A “Future of Registries” plenary session featured Timothy Westmoreland, director, Center for Medicaid and State Operations, Health Care Finance Administration (see article below); an update on All Kids Count from William C. Watson Jr., director of the All Kids Count National Program Office; an update on NIP registry activities from Robb Linkins, NIP/CDC; and an update on American Immunization Registry Association (AIRA) from Paula Soper, AIRA president.  Speaker presentations highlighted the progress that registries have made in recent years in the areas of technology, data quality, privacy/confidentiality, collaboration, provider recruitment, use of registry data, and funding.  Several of the presentations are online at www.cdc.gov/nip/registry.

Look for More Information on Medicaid Funding for Registries

Registries should be looking to their state Medicaid agencies to become key funding sources, according to Timothy Westmoreland, director of the Center for Medicaid and State Operations, Health Care Financing Administration (HCFA). Speaking at the March Immunization Registry Conference in Newport, Rhode Island, Westmoreland described the potential for state Medicaid funds to become an important source of funding for state immunization registries. Because they contain accurate, up-to-date information about the health of children, registries are seen as valuable sources of information about Medicaid enrolled children. Currently, only a few states have negotiated agreements with Medicaid as a source of funding. Medicaid is now developing the mechanism for states to apply for Medicaid funding for registries. Immunization registries will be notified when the policy is finalized; the anticipated date is late June/early July. Westmoreland’s message underscored the importance of immunization registries and health departments learning to work with the Medicaid agency in their states.

Utah Health Plans Like “Lite” Version of Registry

Recognizing that health plans don’t need all of the information that the registry can provide and that not all users should be able to access all the information, the Utah state registry has developed a “lite” version of its registry software, WebKIDS. “WebKIDS Lite,” a read-only version of the registry, is based on a “need to know” principle: It provides health plans only with access to information that they need for HEDIS data collection. Health plans can query one child’s name at a time for an immunization history, print out a report of the child’s vaccination status, and/or generate a comma-delimited file that can be used to download a child’s information directly to the health plan’s computer system. Because WebKIDS Lite is read-only, it does not allow the end-user to update the patient’s record. Unlike the regular version, it does not have an immunization forecast function, vaccine inventory function, and does not have the same reporting capabilities. 

Two HMO’s are presently using the “Lite” version, including Intermountain Health Care, Utah’s largest HMO, which has found approximately 25% of their sample in the registry database. That percentage will increase as the registry becomes more populated. Other potential users - because they only need to query a child’s immunization status - are schools, Head Start and day care programs. Contact: Christine Perfili, cperfili@doh.state.ut.us.

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